I decided I needed a bit of positivity in my life before bed, so here’s a quote I like. This is a page of my bullet journal, which I will be writing a post about very soon!
This quote always sticks in my mind, thanks J K Rowling!
Feeling a bit sorry for myself today. Not only am I achy and tired as hell, but I have ANOTHER cold. The last one I had lasted nearly 4 weeks and that was less than 2 weeks ago that it finally went… my immune system is rubbish and I get every illness going, very frustrating! I really can’t afford to be ill this week as I am off on a 4 day hike on Friday! (Something else I am worried about given the tiredness and achiness! But it has been planned for ages so I can’t let people down)
I am feeling pretty run down and it’s only Monday. Woke up this morning with a sore throat, cough and a cold… it all appeared in the night! Damn it immune system, you’re meant to stay awake!
It’s not yet 9pm and since I finished work I did have a nap, but I’m off to bed now. Hoping to sleep it off! Cue the lemsip!
Hopefully I will be back with a more positive post sometime soon, but today I just wanted a bit of a moan.
After ages of trying to convince the GP there is something wrong, a couple of months waiting for a triage appointment and then months of waiting to see the specialist, I finally had my hospital appointment on Tuesday.
I was anxious as hell. Didn’t sleep well the night before. I was a bundle of nerves. I was wondering what they would say. Would they give me the diagnosis I was expecting and dreading? Would they say oh there’s this test we haven’t done yet, followed by more waiting? Would they say “pull yourself together woman, there’s nothing wrong!”? (Ok I never thought they would say it like that but you know what I mean!) or would it be another red herring like the triage appointment, where I thought it was with the specialist and it turned out to be triage?
I went to the appointment and the doctor was actually very nice. He asked me a whole load of questions, I answered them. Some of them I had answered before at the triage appointment, some were new. Anyway, he listened and wrote down notes. Then he did a physical examination including some prodding which actually really hurt! And then he started talking about treatments, he said they have a CBT group for people with fibromyalgia. I stopped him there and said “so is that what you think it is?” Because he hadn’t said so at that point.
He said yes, that’s what the diagnosis is. We can call it chronic fatigue syndrome or we can call it fibromyalgia but the treatments are the same for both and he is not too bothered about the diagnosis, more about the individual and the treatment. That was kind of nice to hear and it stopped me from overthinking the diagnosis at the time… I have fibromyalgia.
So the next thing is to see the CBT therapist that specialises in chronic pain/fatigue conditions and see the physio for an exercise plan. He did not think a half marathon was a good idea, damn – I’m meant to be doing one in spring!
In one way it was a relief. I have suspected for some time that I might have fibromyalgia but now I have a diagnosis. I am sad that he couldn’t say “oo actually you’re deficient in vitamin X, take this and all your symptoms will go away”, but that was never going to happen. Now I know that there’s a name for what I am experiencing and it is a real condition, this is not just me, and it’s not just in my head. That validates me a little.
And there’s the other side.. being diagnosed with a condition that I know there is currently no cure for. A chronic health condition which may or may not get worse over time. I need to be careful not to use it as an excuse not to do things, and also be aware of my limits… a fine balance.
Anyway I am off to sleep now. I’m sure I’ll write on this topic again pretty soon, but wanted to write an update and get it all out of my head.
I haven’t written in a little while. I was in two minds about which post to publish today. It has been an interesting couple of days. I have decided to go with the shorter and more positive post today so I have more time to get the other one how I want it.
So today I jumped out of a plane! It was my first sky dive. I was worried about getting panicky once we were in the plane or not being able to do it but I did it and it was amazing. It’s hard to put into words the feeling, but I really felt alive and that was a great feeling! I felt real and alive and connected and in awe of the beautiful views and the fact that I was thousands of feet up in the air essentially dangling from a parachute. It was so cool, and the nice thing is that S (my boyfriend) skydived too, he went just before me but we were in the same plane. It was a great experience to share, and we both decided a hot drink was needed afterwards from all the adrenaline!
Obviously it was a tandem jump so the instructor did everything, so really there was no jumping involved. I just got told to adopt a specific position (head back, hands on the shoulder straps, feet tucked behind) and suddenly, woosh, we are in free fall!
It was an amazing experience and I’m so glad I decided to do it, definitely one to tick off my bucket list! I feel proud that I did it and I didn’t let anxiety stop me!
After today it’s made me realise there are loads of things like that that I would love to do one day, so tomorrow (I have booked another day off work to relax – proud of myself!) I am going to write a bucket list 😊
Have you ever skydived? What’s on your bucket list? I might share mine once I’ve written it!
Feeling very stressed and like I’m not coping at the moment. This is not how you are meant to feel after a holiday…
I can tell I am not very well mentally at the moment because I am struggling to manage my stress, even at work. Usually at work I can separate it from everything and just do my job and worry about everything else later. This week I felt like I got in a flap about things I would normally deal with fine.
My anxiety is pretty high and my sleep isn’t good (a crying doggo with a poorly tummy at 4am doesn’t help! – not that it’s his fault!)
I want to be positive but right now it’s hard. I have a few plans over the weekend and that is stressing me out. I wanted a weekend to do nothing but I have too much to do. All nice things but somehow it doesn’t feel nice, it feels like pressure.
Off to bed, TGIF tomorrow!
Love, Ellie xx
Today I am in Edinburgh. We popped into a museum of writers and I saw this quote which I liked so thought I’d share…
“To travel hopefully is a better thing than to arrive, and the true success is to labour” – Robert Louis Stevenson
Love Ellie xx