In denial? 

Since diagnosis in August, I’ve gone through a whole range of emotions about fibromyalgia… disappointment, anger, depression… but today I want to talk about denial. 

Let me start by saying this is just how I am feeling and does not reflect the situation anyone else is in. I am not in any way saying that people who (like me) are able to function quite well do not have fibro, but I just wanted to write about my concerns about myself. 

I know that I get pain. I know that’s not normal. I know the level of tiredness I experience isn’t normal either. 

But 

(And there’s always a but)

I sometimes feel like (and today is one of those days) I am able to do too much for someone with fibromyalgia. I work full time (and have been working over fulltime since April – left my 2nd job yesterday to go ‘down’ to fulltime) and I manage to do a lot of things like being a scout leader and dog walking. 

Shouldn’t I be stuck at home if I have fibromyalgia? It can’t be “that bad” if I am able to do these things. 

What if it isn’t fibromyalgia and I’m just making a big fuss. 

Everyone else I have come across with fibro has it much worse than me, so what if mine isn’t real? 

I know I have a diagnosis now but today I feel like it’s not valid. 

Tomorrow I have a hospital appointment with the pain and fatigue CBT team, I am interested to see how that goes. 

Feeling a bit funny at the moment. I think part of me wants the diagnosis to be wrong, and part of me just doesn’t feel like my experience is valid enough for the diagnosis… maybe I’m just in denial?

Love,

Ellie xx

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In denial? 

Since diagnosis in August, I’ve gone through a whole range of emotions about fibromyalgia… disappointment, anger, depression… but today I want to talk about denial. 

Let me start by saying this is just how I am feeling and does not reflect the situation anyone else is in. I am not in any way saying that people who (like me) are able to function quite well do not have fibro, but I just wanted to write about my concerns about myself. 

I know that I get pain. I know that’s not normal. I know the level of tiredness I experience isn’t normal either. 

But 

(And there’s always a but)

I sometimes feel like (and today is one of those days) I am able to do too much for someone with fibromyalgia. I work full time (and have been working over fulltime since April – left my 2nd job yesterday to go ‘down’ to fulltime) and I manage to do a lot of things like being a scout leader and dog walking. 

Shouldn’t I be stuck at home if I have fibromyalgia? It can’t be “that bad” if I am able to do these things. 

What if it isn’t fibromyalgia and I’m just making a big fuss. 

Everyone else I have come across with fibro has it much worse than me, so what if mine isn’t real? 

I know I have a diagnosis now but today I feel like it’s not valid. 

Tomorrow I have a hospital appointment with the pain and fatigue CBT team, I am interested to see how that goes. 

Feeling a bit funny at the moment. I think part of me wants the diagnosis to be wrong, and part of me just doesn’t feel like my experience is valid enough for the diagnosis… maybe I’m just in denial?

Love,

Ellie xx

Stress

Feeling very stressed and like I’m not coping at the moment. This is not how you are meant to feel after a holiday… 

I can tell I am not very well mentally at the moment because I am struggling to manage my stress, even at work. Usually at work I can separate it from everything and just do my job and worry about everything else later. This week I felt like I got in a flap about things I would normally deal with fine. 

My anxiety is pretty high and my sleep isn’t good (a crying doggo with a poorly tummy at 4am doesn’t help! – not that it’s his fault!) 

I want to be positive but right now it’s hard. I have a few plans over the weekend and that is stressing me out. I wanted a weekend to do nothing but I have too much to do. All nice things but somehow it doesn’t feel nice, it feels like pressure. 

Off to bed, TGIF tomorrow!

Love, Ellie xx

A spark of motivation 

Working in the field of mental health, I spend 5 days a week trying to support clients with their mental health and suggesting goals – try mindfulness or write down three positive things everyday or make time for self care. I often find myself coming out with gems such as “you can’t pour from an empty cup” and “you are always focused on others, but what do YOU want?” 

Hypocrite. 

Yep, I am a massive hypocrite. 

But no more. I am going to try and take my own advice. I am going to try and be more positive, make time for self care, be selfish sometimes. 

Now I am not going to sit here and pretend that a bit of mindfulness here or goal setting there is going to cure anyone because that would be bullshit. You know that, I know that. But it’s about doing things that help, even a little bit. It’s about building confidence, helping someone develop their identity – things they do or don’t like, enabling people to get that sense of achievement when they meet a goal. It’s about small steps and sitting with that person and really listening (because so often people don’t listen) So now it’s time to support myself.  I’m going to work on being the best I can be, and to help myself be a little bit happier again. 

One of my lovely blogger friends is doing 100 happy days at the moment, I tried it once before and didn’t manage it all, but I’ve been inspired by my blogging friend so I’m going to try again but in my journal this time, a little more manageable. I’m on Day 3 so far, I am managing and I won’t worry if I don’t manage all 100 days in a row!

 I have started my mindfulness again lately (I did 25 days in a row but went away for the weekend and lost my streak – but I started it up again today). I have a bullet journal, I find it very therapeutic but for some reason I stopped*, I will get that going again. 

A little bit of motivation has surfaced today! 

I am going to do some blog posts on the things that help me such as mindfulness and bullet journaling. What helps you? Is there anything you would like me to write about? 

Love,

Ellie xx

*When I start feeling unwell I stop all of the things that actually helped before. It’s counterproductive but the motivation goes and before you know it, all the good things have been left behind and you’re wallowing even more! 

Progress 

I did a talk for another organisation this afternoon. I got really anxious even though it was informal and I know my own service.. I panicked and I don’t think they were impressed. 

Feeling pretty embarrassed as I know I didn’t seem very professional and they probably judged me. I am not a good public speaker at the best of times but today was not my best day. I hope they don’t judge my service by my talk. There was a snooty woman that made me nervous and that didn’t help! 

BUT and it’s a big but…

The world has not ended. I have not spontaneously combusted. Life goes on and so does my day. This is a revelation. My fear of failure would have had me in tears, full on panic attack mode. But although I feel a bit disappointed that I didn’t perform at my best, I feel ok. And that’s good. 

Progress!!

Love 

Ellie xx

Migraine

Had to call in sick today. My migraines are bad this week. Two lots of tablets haven’t got rid of today’s one. 

It’s a bit better than it was but not great. I drove half way to work and turned round. 

Was going to push through it but thought what is the point. The office lights and computer screen won’t help and I don’t feel like I can concentrate properly. So back to bed. 

Feeling disappointed in myself. I find it hard to take a sick day. But I did it. I am trying to look after myself better. Small steps. 

Love 

Ellie xx

A collection of things

A few things:

– One month, 31 (or 30) days… until I’m off to Germany!!

That is scary stuff, scary and exciting!

– And today I got my laptop back, so I will be back to posting more and hopefully will see everyone’s posts as I am not relying on the WP app anymore (which seems not to put all posts on the reader!)

– I am still feeling quite motivated and happy(!) at the moment, despite…

– Last night I slept really badly because I kept having nightmares. They are not the usual really horrible type of nightmares, I can’t remember most of them, and a lot of them are just strange! (Like a dream featuring my house being full of cats!) After one last night, which I can’t really remember what happened but I know my family and I were in danger, I woke up with a racing heart, panicky. I have to confess I turned the light on and slept with the light on for a while because I was feeling very distressed and anxious (although I don’t quite know why.)

– And now I’m off to work!

A good day

Today has been a long day, but also a good day. Today is Thursday, which is the day I do some volunteering at a day centre for people with mental illnesses. I also agreed to work this evening in the supermarket where I work so it was going to be a long day! Started at 9:30 this morning and didn’t finish until 9 this evening (other than a couple of hours between in which I had a nap!)

The volunteering went well, today we went for a picnic in the park and the ladies seemed to enjoy it (and so did I.) I am really enjoying my work there, gaining greater insight into how different mental illnesses affect different people, and just chatting to lots of different people. They are such a lovely group of ladies, and even though they all have their own stories and have been through various difficult things, they are all kind, friendly and full of life. It makes me really happy to see how they support each other and it also makes me realise I need to take a more positive approach to things sometimes.

After a lovely afternoon in the sun with sandwiches and games, I popped home for a bit for a nap and to get changed for work. Then it was off to the supermarket where I seem to spend so many hours of my life. Tonight I was on tills which I usually hate, but it wasn’t too bad. I had lots of nice customers and not many rude customers and the time went by reasonably quickly – this is the sort of shift I need more of!

I realised again today that I am feeling much more like me at the moment, like I said the other day. I have come so far from where I was, and even though things can still be hard at times, I am determined that I am not going to let things get bad again, I’m fighting this with everything I have. I’m feeling quite motivated at the moment, especially because my volunteering has reassured me about my future career hopes – I want to work in mental health, as a clinical psychologist eventually. I know it will be a long journey and it’ll be hard, and I know I need to get myself fully well before I can do it, but I am determined that I will do it! – I can and I will!

One of those days

Last night I went to bed early, really early. Why? Because I felt I’ll and because I was meant to be at work at 7am this morning.

So my alarm went off at 6 this morning, I got up, had breakfast bla bla bla… Drove to work. And my name was not on the rota. The guy who sorts out the rotas wasn’t there, so I drove home and went back to bed. Not a happy bunny (or elephant!) this is not the first time they’ve mucked up my hours. I was meant to be working Wednesday this week and they took that one off (but I knew in advance) and now they take away my other day of overtime, and don’t bother to tell me! So angry about this. And I could do with the money so it’s really not ideal.

One good thing is that I got to go back to bed for a few hours, still not feeling well today. I’ve brought out the lemsip max! But still very angry about this whole work thing, they keep messing around with my hours, and considering I was told the want me to work 30 hours a week, 8 or 16 just isn’t cutting it for me!

I’m working tomorrow and Sunday, but that’s it for this week. Highly irritating that there’s barely any overtime and there’s nothing I can do about it! Grr!

So to conclude: my immune system is crap and my manager at work (well one of them) is crap.

I got upset at work this morning. After getting up that early especially when I was feeling ill, it was all a bit much and I couldn’t stop the tears leaking out of my eyes. But I’m more angry than upset… I often cry when I’m angry. I cry when I’m sad too, but it’s annoying when I cry from anger because I look like I’m overreacting and being upset over nothing.

I’m off to see S this afternoon, maybe he will be able to cheer me up (and hopefully I won’t make him ill too!)

Lots of love,
Ellie xxx
P.s. the other day S said I’m an anxious little elephant… And he doesn’t know the name of my blog! Spooky or what!?

I did something for me

Today I was meant to be doing my volunteering and then working in the evening. This morning I woke up feeling completely exhausted and achy. I don’t know if it’s the weather or maybe I am just too run down and exhausted from doing too much… but I called in sick to my volunteering, and now I have until 5pm to sleep, relax and take time for myself. 

I feel guilty about it, as I physically could do the volunteering today. I feel bad for not going, like I’m letting people down. But to be honest, when I’m feeling like this I’m probably not much use to anyone anyway. Yes I’m tired and yes I’m achy but it’s not impossible to deal with. But something I’ve learned in the past is that if I keep going and going and going, eventually I burn out and that’s when things start to go really downhill. So today I am doing something for myself: nothing.

So now I’m going to watch the rest of Silver Linings Playbook (as recommended by MMS here!) and then I am going back to bed to catch up on sleep!